SB27
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Create a new section of KRS Chapter 214 to define terms; establish the Kentucky Parkinson's Disease Research Registry within the Cabinet for Health and Family Services; direct the secretary of the cabinet to establish the Kentucky Parkinson's Disease Research Registry Advisory Committee and make appointments; require the cabinet to promulgate administrative regulations to designate Parkinson's disease and the identified Parkinsonisms as diseases that are required to be reported to the cabinet, establish a system of…
Introduced: January 7, 2025
Last action: March 25, 2025
Plain-language summary
This bill creates a statewide registry to track how many Kentuckians have Parkinson's disease and related conditions, collecting data from health care providers starting January 1, 2026. The registry is meant to support research by making that data available to researchers while protecting patients' privacy, including giving patients the right to opt out of having their information shared. A new advisory committee will help oversee the registry, and the Cabinet for Health and Family Services…
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Legislative History
Primary Sponsor
Co-sponsors (7)
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